Newly Diagnosed

Anchor Phrase: I'm Part of the Story

Dear Caregiver,

The phrase that will anchor us in this chapter (and beyond) is “I’m part of the story.” 

Your person has recently received a life-changing diagnosis and at this moment all of the focus is on them. But I know from personal experience that your life has also just been flipped upside down and yet very little attention is being given to you. You may even feel as if you’re not allowed to express your feelings about how challenging this is because you aren’t the one who is ill or injured. 

Friend, I’m here to tell you that you are part of the story, that I see and acknowledge that this diagnosis impacts you in countless ways, and that here, in this chapter, you will find resources to process that reality and be supported as you do. 

I’m so sorry this is happening to you, but since it is, I’m glad you’ve found your way here.  

reflection questions

  1. In what ways has your loved one’s diagnosis had an impact on your life?
  2. What reactions do you have or emotions do you experience when you hear me say that you are part of the story?
  3. What might be at the root of those feelings?
  4. How might this season of caregiving be different if you go into it with the understanding that you are part of the story?
  5. What can you do to help yourself believe and remember that you are part of the story?

Guided Meditation

podcast episodes

Essays and Poetry

Caregiver Position Description

Position Summary:  The Caregiver cares for the patient’s medical, physical, emotional, spiritual, mental, social-emotional, financial, organizational, and dietary needs.
Reporting to: This position reports to the patient, medical staff, the patient’s mother, other family members, friends, acquaintances, and everyone on Facebook.

1. Be or become an expert on the patient’s illness.

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Holding Pattern

We are:
Holding the weight of this diagnosis on our shoulders and our souls,
Holding the doctors and researchers accountable to do their jobs, even and especially in this most complicated case,
Holding our breath that all will go well,
Holding out hope that he will defy statistics,

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Tools Related to this Chapter