Discharged
after 18 days,
(13 longer than projected,)
most of which were
NOT
due to the
Seriousness
of the surgery itself,
though
Serious
It Was.
“When they say
‘Major Surgery,’”
one doc said,
“This is what they mean.”
The Extra Days were due to
Infections.
Infections that were not with him
when he arrived,
but instead
acquired
At the Hospital.
As if,
it is part of their business plan.
“He’s healing too quickly from that
Major Surgery,”
they said.
“What can we do to keep him here?”
they said.
“C. Diff, perhaps? With a touch of Staph?
That ought to triple the length of his stay.”
Or Perhaps,
it is part of their care package.
“Every patient gets:
a hospital gown,
travel-sized shampoo,
and a touch of C. Diff.”
For these hospital-dispensed infections
no one
Apologized,
Took responsibility,
Action,
or Blame,
making this typically forgiving
Wife and Caregiver
feel
An itch of Litigiousness,
A twinge of Bitterness,
And a surge of Anger.
But even those
Infections
he eventually overcame, and
after 18 days
he was
Discharged.
Now.
Three Days Home
and the scars still remain.
The ever-changing bruise on his arm from an
Infiltrated IV on Day 2.
Purple dots to mark the spots
where needle after needle poked for blood.
“You’ll feel a stick.”
they always say,
as if
they are the first to do this to his
all too familiar arms.
Perhaps,
if the chart had been read
they would know that this is
Year 5,
Surgery 20.
This is not,
as we say,
Our First Rodeo.
He knows he’ll feel a stick.
Please,
Save your Breath,
perhaps for some healing words of kindness.
Other marks include:
gray, sticky spots where bits of adhesive still remain
from countless pieces of tape stuck to gauze
Even After
my homemade sign on the hospital door made
clear
with words, illustrations, and even examples
that tape was not to be used on his sensitive skin.
And yet,
days later
the adhesive remains,
as do the skin tears from the tape I drew a line through
on my homemade sign.
Even as the scars from surgery,
the four where the robot entered,
and
the six-inch incision
closed with thirteen staples,
Heal
other reminders of the 18 days remain:
The credit card statement,
which for days lists nothing but
charges for:
coffee,
hospital food,
parking,
a depressing trilogy of poor nutrition and long hours,
a looping road map of my two and half weeks.
Other scars are deeper
and appear as flashes of remembering.
They feel simultaneously
visceral
and
other worldly.
Like the moment where
he moaned in pain,
Writhing,
Groaning,
Begging For Help
And yet,
No
One
Came.
I asked for help
Once
Twice,
This time more firmly.
Nothing.
I pulled the red cord.
Certainly the red cord would send someone running.
No
One
Came.
“Where are they?” he moaned.
“I’m dying!” he groaned.
I flung the door wide.
I stared at the faces at the desk,
Too many there to have an excuse to
not be coming.
I threw my hands high and said,
not calmly at all,
“Is ANYONE coming?
We
Need
Help!”
That moment will remain
Seared
Scarred
Deep.
It will not heal like the
Six-inch incision.
For that incision was procured
while asleep
and was done
with consent
and
for the greater good
of his body.
Unlike
My Wound,
which was procured while wide awake
and felt as if
the world had
turned its ear from us
in our moment of
Greatest Need
and I
was the only one who could
Fight
for recognition of
his Pain
and
steps towards
his Relief.
In that moment
(as in all of the 18 days)
I should have been allowed to be
his Wife,
caring for him
as medical staff did what they were trained to do.
Instead.
I had to leave his side
Repeatedly
to make his needs known,
to fight,
to decide how far to go
on the path of anger and disruption,
a path I rarely take,
typically choosing the
road that is higher
the road built on
Love,
Forgiveness,
Grace.
And yet,
the way he was treated
or at times
not treated
Was Not Okay.
And so the path jumps up in front of me.
Friends and family give me a road map there,
Questioning
with their eyes more than their words
why would I choose to not take this path
during and after seeing such things
Happening
Or Not Happening
to my beloved.
But
anger and disruption and scratching the itch of litigiousness,
each of these take
Energy,
Time,
Mental Clarity,
gifts caregivers steward wisely.
Every ounce of each of those is
poured
into the care of the loved one,
some days slowly and carefully and delicately, like
warm, soothing tea into a painted china cup
in a candlelit restaurant.
Other days big and splashing, like
fresh lemonade cascading into a large glass of crinkling ice
on a hot summer day.
Either way,
they are
Poured
straight from the heart, mind, and spirit of the caregiver
in a singular direction
for a singular purpose.
If a spare ounce ever remains,
it is used for others in the village,
in our case
our Daughter.
She
gets the extra ounce,
not me and
certainly not
The Patient Relations Liaison.
And so,
the energy is saved and used to
Watch, and
Care, and
Pour.
Now,
we’ve been
home 24 days.
Antibiotics are gone.
Infections have quieted.
Physical scars are fading.
Credit Card statements show a more varied itinerary.
Greeting cards are slowing.
Casserole offers far less frequent.
All signs that the
Hospital Stay
that was 18 Days
is behind us.
And yet,
that same scene continues to replay in my mind
the one when
No
One
Came.
The staff inflicted scar,
much more fresh and raw and painful than the one created by a scalpel,
still burns.
5 Responses
This is good. Thank you for sharing this kind of truth and rawness. I read this and feel your anger and frustration… I feel like I’m suffocating a little…
When the hospital professionals fail to do their job and it affects the well being, perhaps survival, of your loved one, that searing injury never heals for the caregiver. Distrust is always in the back of your mind forever as you navigate all future medical care. This wound taints everything. Allison, your writing speaks volumes. Thank you for speaking so eloquently and honestly. Sending a huge hug. ❤️
Beautiful. So true and beautiful.
So moving…so true…so heartbreaking.
You have captured my pain. The wife, the caregiver and injured in the accident, no weight bearing for 8 weeks, wheelchair bound, asking for rides to visit, 68 days in neurotrauma. Tears, terror, he is so fragile anything could take him. Wounds from not being turned, changed and cleaned. Every minute I am there I ask, look and get stares and curt replies. “We are doing the best we can”, not an answer. Litigation comes to mind, do I have the strength to pursue? Not now, my strength is saved for him. And so 9 months later we continue in rehab, everyday a chance for infection. But as my new tattoo reads, “nevertheless she persisted “. Blessings